MONDAY JUNE 17th, 2019
Today was a good day!
We learned today that Chris's lymphomas is a high grade B-cell lymphoma. While it's not an official diagnosis, it's certainly pointing us in the right direction.
Most of the rest of the day was a whole lot of waiting. We were hoping to hear the details of a transfer to Froedtert Hospital so that we could start expediting any of the remaining tests and start treatment as soon as possible. Finally, around 3:30pm, we heard that the transfer had been approved by all the necessary parties and we were just waiting on a confirmed bed at the hospital.
Unfortunately, the bed/room number didn't come until about 7pm. After that, an ambulance had to be called to transport Chris since he was on a continuous drug infusion; unfortunately the correct type of unit wasn't called the first time, so he had to wait a bit longer to get on the road. Around 9:30 pm, Chris was finally on his way.
We just got a room in the oncology unit of the Center for Advanced Care here. After speaking with the PA upon arrival, it sounds like the pathologist will take a look at Chris's biopsy slides tomorrow and maybe have some more information. For tonight, we are focusing on keeping Chris's pain under control, and will hopefully start formulating a plan with the oncologist here tomorrow morning.
As, I am typing this I feel like I used the word hopefully quite a few times. It's hard to find a different word to use when the future is so unknown and right now, but we're looking forward to that changing in the next few days.
As always, Chris is optimistic and in good spirits despite the situation.
Thanks for the support.
V
Today was a good day!
We learned today that Chris's lymphomas is a high grade B-cell lymphoma. While it's not an official diagnosis, it's certainly pointing us in the right direction.
Most of the rest of the day was a whole lot of waiting. We were hoping to hear the details of a transfer to Froedtert Hospital so that we could start expediting any of the remaining tests and start treatment as soon as possible. Finally, around 3:30pm, we heard that the transfer had been approved by all the necessary parties and we were just waiting on a confirmed bed at the hospital.
Unfortunately, the bed/room number didn't come until about 7pm. After that, an ambulance had to be called to transport Chris since he was on a continuous drug infusion; unfortunately the correct type of unit wasn't called the first time, so he had to wait a bit longer to get on the road. Around 9:30 pm, Chris was finally on his way.
We just got a room in the oncology unit of the Center for Advanced Care here. After speaking with the PA upon arrival, it sounds like the pathologist will take a look at Chris's biopsy slides tomorrow and maybe have some more information. For tonight, we are focusing on keeping Chris's pain under control, and will hopefully start formulating a plan with the oncologist here tomorrow morning.
As, I am typing this I feel like I used the word hopefully quite a few times. It's hard to find a different word to use when the future is so unknown and right now, but we're looking forward to that changing in the next few days.
As always, Chris is optimistic and in good spirits despite the situation.
Thanks for the support.
V
Glad to hear you were able to get transferred to Froedtert and will hopefully get more answers soon. Thanks for the update Veronica.
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